Creating Malignancy Survivorship Information Hotspots for Far reaching Growth Control: Proposed BRFSS 2009 Modules.

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Creating Disease Survivorship Information Hotspots for Far reaching Tumor Control: Proposed BRFSS 2009 Modules Temeika L. Fairley, PhD Communities for Sickness Control and Anticipation National Place for Endless Illness Counteractive action and Wellbeing Advancement Division of Tumor Aversion and Control
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Creating Cancer Survivorship Data Sources for Comprehensive Cancer Control: Proposed BRFSS 2009 Modules Temeika L. Fairley, PhD Centers for Disease Control and Prevention National Center for Chronic Disease Prevention and Health Promotion Division of Cancer Prevention and Control

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Acknowledgments Comprehensive Cancer Control Branch (CCCB) Program Directors for the National Comprehensive Cancer Control Program (NCCCP) DCPC Inter-branch Survivorship Work Group CCC National Partners

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Comprehensive Cancer Control: Comprehensive Cancer Control is a cooperative procedure through which a group pools assets to diminish the weight of malignancy .

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Comprehensive Cancer Control Involves the incorporation of tumor counteractive action and recognition exercises including: Research Evaluation Health Education and Communication Program improvement Public Policy Surveillance Clinical Services

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Results of CCC Programs Risk Reduction Early Detection Better Treatment Enhanced Survivorship Reduce Health Disparities Photo kindness the Alaska Native Tribal Health Consortium, © Clark James

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There were pretty nearly 10.1 million disease survivors in the United States. NCI. Diviner Cancer Statistics Review, 1975-2002 . The quantity of disease survivors in the United States expanded consistently amid the previous three decades: CDC/NCI. MMWR 2004;53:526-529. Expanded from 3.0 million (1.5% of the U.S. populace) in 1971 to 9.8 million (3.5%) in 2001. CDC. Disease Survivorship–United States 1971-2001. MMWR . 2004: 53:526-529.

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Enhanced Survivorship Enhance personal satisfaction for malignancy survivors Physical Psychological Practical (i.e., monetary and lawful issues, wellbeing protection, long haul arranging) Study mediations that advance wellbeing and prosperity Exercise Pain administration Coping

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Pennsylvania Assessing the unmet psychosocial needs of disease patients and their parental figures, over all phases of growth and all consideration settings Survivorship Program Example

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History of proposed BRFSS Cancer Survivorship Modules August 2006- - CCC Midwest Regional Evaluation Meeting: Request improvement of far reaching tumor control modules for incorporation on BRFSS studies Modules compare to proposed results measures for CCC (i.e., lacking state level information sources)

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History of proposed BRFSS Cancer Survivorship Modules Reports suggesting growth survivorship information accumulation/observation: National Action Plan for Cancer Survivorship (2004) Presidents Cancer Panel Report (2004) Institute of Medicine Report (2006)

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History of proposed BRFSS Cancer Survivorship Modules National Health Interview Survey (1992) Cancer Control Supplement and Cancer Epidemiology Supplement Cancer Survivorship Section 18 questions- - treatment, protection, support, and so on 24,040 respondents- - >1553 tumor survivors State-included BRFSS (2000-2006) Cancer Prevalence Questions (6+ states)

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Our definitive objective is to help CCC projects in utilizing information from the BRFSS, at the nearby, state, and government levels, to meet general wellbeing needs such as… Identify issues of disease survivors Establish and screen wellbeing objectives for disease survivors Design and assess malignancy survivorship intercession projects and arrangements Support examination Raise mindfulness and instruct about tumor survivorship

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Behavioral Risk Factor Surveillance System (BRFSS) Established in 1984 Largest persistently led phone wellbeing review on the planet 355,710 meetings in 2006 50 expresses, the District of Columbia, Puerto Rico, the Virgin Islands, and Guam

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Behavioral Risk Factor Surveillance System (BRFSS) Collects data from grown-ups matured 18 years and more seasoned Monitor hazard practices identified with incessant maladies, wounds, and demise utilization of preventive administrations Effective apparatus in counteracting ailment and advancing wellbeing

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Establish and Track Health Objectives Healthy People 2010 Objectives Chronic Disease Indicators State Goals & Objectives

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Develop and Evaluate Programs: Steps to a HealthierUS

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1990 Identify Emerging Health Problems: Obesity Trends* Among U.S. Grown-ups — 1990, 1996, 2004 (*BMI  30, or around 30 lbs overweight for 5’4” man) 1996 2004 No Data <10% 10%-14% 15%-19% 20%-24%  25%

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Prevalence of Obesity* Among U.S. Grown-ups (*BMI  30, or around 30 lbs overweight for 5’4” man) 1996 1990 2004 No Data < 10% 10%–14% 15%–19% 20%-24%  25% Prevalence of Diabetes* Among U.S. Grown-ups (*Includes gestational diabetes) 1990 1996 2004 No Data < 4%-6% 6-8% 8-10% > 10%

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Prevalence of Multiple Risk Factors * for Heart Disease and Stroke Among U.S. Grown-ups Percent of Population with 2 or More Risk Factors, Age-acclimated to 2000 U.S. Populace 1991 1995 1999 No Data < 22% 22%–24.9%  25%-29.9%  30% * Risk components incorporate hypertension, high blood cholesterol, smoking, heftiness and diabetes. Source: Greenlund et al. Archiv Intern Med 2004;164:181-8

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Support Policies and Legislation: Prevalence of Safety Belt Use, 2002 Areas with essential seat strap laws Prevalence > 80% of continually utilizing a seat strap among persons matured > 18 years. Commonness < 80% of continually utilizing a seat strap among persons matured > 18 years. Source: CDC. Effect of essential laws on grown-up utilization of seat straps – United States, 2002. MMWR 2004;53:257-260.

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Questionnaire Development Program submit proposition Fixed center Rotating center Optional module Internal and External Review Cognitive Testing – 2 Phases* Final adjustments Proposals submitted to organizers Coordinators vote = theme of general wellbeing significance

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BRFSS 2007 Core Topics

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BRFSS 2007 Rotating Core Questions

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BRFSS 2007 Optional Modules Actions to Control High Blood Pressure Adult Asthma History Arthritis Management Cardiovascular Health Childhood Asthma Prevalence Colorectal Cancer Screening* Diabetes General Preparedness Healthy Days (Symptoms) Heart Attack and Stroke

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BRFSS 2007 Optional Modules Intimate Partner Violence Mental Illness and Stigma Random Child Selection Module Reactions to Race Sexual Violence Prostate Cancer Screening* Women’s Health* Visual Impairment & Access to Eye Care Veterans Health Status

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Examples of State Added Questions Earthquake crisis readiness West Nile Virus Bioterrorism Cancer Prevalence* Suicide Osteoporosis Food taking care of

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Proposed Cancer Prevalence and Survivorship Questions

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2009 BRFSS Questionnaire: Emerging Core Questions (n=4) Cancer predominance Allow state-level evaluation of wellbeing status or behavioral dangers for disease survivors (e.g., smoking pervasiveness among growth survivors, wellbeing screenings among malignancy survivors, and so on.) Source of inquiries 1992 NHIS Cancer Survivorship Supplement State BRFSS tumor commonness questions

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Proposed Cancer Prevalence Questions 1. Have you ever been told by a specialist that you had growth? 2. What number of various types of growth have you had? 3. [If more than 1] The last time you were determined to have disease, what kind of growth would it say it was, or in what some piece of the body did the malignancy begin? On the other hand [If just 1] What sort of malignancy would it say it was, or in what a body\'s piece did the growth begin? 4. At what age or in what year would you say you were first informed that you had growth?

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2009 BRFSS Questionnaire: Optional Module Questions (n=10) Cancer survivorship Allow state-level appraisal of survivorship issues identified with growth treatment, torment, and access to mind. Wellspring of inquiries 1992 NHIS Cancer Survivorship Supplement State CCC projects, CDC staff

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Proposed Cancer Survivorship Questions 1. What sorts of specialists did you see for your malignancy treatment? 2. What sorts of specialists do you see now for your subsequent disease care? 3. What sorts of treatment did you get for this late tumor? 4. After you completed treatment for growth, did a specialist, medical attendant, or other wellbeing proficient ever give you a composed outline of the considerable number of medications that you got ? 5. Have you ever gotten guidance from a specialist, medical attendant, or other wellbeing proficient about where you ought to return or who you ought to see for normal registration in the wake of finishing treatment for malignancy?

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Proposed Cancer Survivorship Questions (2) 6. Did you have wellbeing protection that paid for all or some piece of your tumor treatment? 7. Is it safe to say that you were EVER denied wellbeing protection or extra security scope in light of you\'re tumor? 8. Did you take an interest in an exploration study or clinical trial as a feature of your growth treatment? 9. Do you feel that you have incessant torment identified with you\'re growth or tumor treatment? 10. Do you feel that your agony is as of now very much overseen?

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Where we are now…Keep Hope Alive! Application process: 2 rounds of intellectual testing and correction March 2008: Proposals displayed at 2008 BRFSS meeting. April 2008: 2009 poll concluded CCC project association Communication with state BRFSS organizers about the significance of these inquiries/modules

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Contact Information! Temeika L. Fairley, PhD: tf

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