THE SCOTTISH LONGITUDINAL STUDY another open door for examination in Scotland.


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THE SCOTTISH LONGITUDINAL STUDY another open door for examination in Scotland Paul Boyle The (Scottish) Longitudinal Study Why does Scotland require a SLS? Things being what they are, what is the SLS? Qualities and shortcomings How does the SLS vary from the LS? How far have we got? Administration issues Security issues
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THE SCOTTISH LONGITUDINAL STUDY another open door for exploration in Scotland Paul Boyle

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The (Scottish) Longitudinal Study Why does Scotland need a SLS? Things being what they are, what is the SLS? Qualities and shortcomings How does the SLS vary from the LS? How far have we got? Administration issues Security issues Accessing the SLS The future…? Meetings

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The (Scottish) Longitudinal Study The England and Wales Longitudinal Study (LS) set up taking after 1971 Census To concentrate on word related mortality and ripeness Scotland included initially Withdrew for subsidizing/test size reasons Original records decimated Re-setting up the SLS Funded by SHEFC, CSO, Scottish Executive, GROS and ESRC Working in close joint effort with GROS, ISD and ONS

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People Director: Paul Boyle Project Manager: Lin Hattersley Research Fellow: Zengyi Huang Database Manager: Joan Nolan Visiting Senior Lecturer: Vernon Gayle Statistician: Gillian Raab Research Fellow: Peteke Feijten Research Fellow: Gerel Altankhuyag 20 structure pickers/administrative associates

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Management panel Paul Boyle (University of St Andrews) Allan Findlay (University of Dundee) Robin Flowerdew (University of St Andrews) Vernon Gayle (University of Stirling/St Andrews) Sally Macintyre (University of Glasgow) Steve Platt (University of Edinburgh)

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Why does Scotland need the SLS? 1991 hardship in Scotland contrasted with England & Wales

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1991 hardship evaluation variables in Scotland and England & Wales

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Scotland is the main nation in Europe that is losing populace The Scottish populace is maturing quicker than in whatever remains of the UK Fertility rates are lower in Scotland that whatever is left of the UK

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1996 age-institutionalized all reason mortality per 100,000 in Europe

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1996 age-institutionalized mortality for every single harmful neoplasm per 100,000 in Europe

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1996 age-institutionalized mortality for threatening neoplasm of the trachea, bronchus and lung per 100,000 in Europe

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Scottish ladies have the most reduced future in the EU Scottish men have the second least future in the EU Women in Scotland can as of now hope to live five years not as much as ladies in Sweden Over the 20 th century, Scotland’s distraught position is a moderately new wonder

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So, what is the SLS?

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So, what is the SLS? www.lscs.ac.uk

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Provides connected information from the Scottish Census and authoritative records Sampling in view of 20 ‘semi-random’ birthdays Initial example drawn from the 1991 Census Similar specimen drawn from 2001 Census

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Data sources Vital insights Births (SLS birthdate) Births (to test individuals) Stillbirths Infant mortality Deaths Widow(er)hoods Health information Cancer enrollments Census 1991 Census, 2001 Census Including information on occupation, monetary action, social class, lodging, ethnicity, age, sex, conjugal status, family unit piece, wellbeing, training, nation of conception, movement, work environment, religion and so on. Populace information Immigration Emigration

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Data sources Vital measurements Births (SLS birthdate) Births (to test individuals) Stillbirths Infant mortality Deaths Widow(er)hoods Marriages Health information Cancer enlistments Hospital scenes Census 1991 Census, 2001 Census Including information on occupation, monetary action, social class, lodging, ethnicity, age, sex, conjugal status, family unit creation, wellbeing, instruction, nation of conception, movement, working environment, religion and so on. Populace information Immigration Emigration

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Strengths Sample estimate much bigger than most reviews BHPS has ~10,000 individuals in GB SLS has ~265,000 followed individuals + ~505,000 family unit individuals in Scotland (1991) The evaluation is obligatory Linkage and follow rates are high Includes those in mutual foundations Ability to connection doctor\'s facility scenes information to financial attributes

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Weaknesses Restricted scope of variables Income Smoking Census data just gathered consistently Not conceivable to come back to the specimen to ask additional inquiries The information are profoundly private

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How does the SLS vary from the LS? Test rate bigger (5.3% versus 1%) 20 SLS birthdays, yet incorporates the four LS birthdays Fewer censuses caught SLS 1991 & 2001 LS 1971, 1981, 1991, 2001 Some registration variables in the LS not coded in the SLS e.g. 1991 work environment Some variables in the SLS not coded in the LS e.g. healing center confirmations and relational unions The SLS is less expensive!

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How far have we got with the 1991 registration? ID of the example Electronic records extricated from 1991 Census Forms were ‘picked’ Flagging information went to NHSCR 1991 specimen followed and hailed Coding 1991 ‘difficult to code’ data Only initially coded for 10% Census Designed interface for information data Implemented occupation and industry coding programming Basic coding finished Occupation and industry coding finished Programming determined variables Completed

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How far have we got with the 2001 statistics? Recognizable proof of the specimen Electronic records separated from 2001 Census Forms not got to as 100% coded and names caught Flagging and following information went to NHSCR 2001 example followed Post-alter, pre-ascription information asked for and got Post-attribution information additionally asked for however not got Confidentiality (record coordinating would uncover exposure controls) Hence, in-house formation of all registration determined variables ~80 finished SLS inferred variables Completed

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1991 following and hailing through NHSCR 274,055 starting example 270,385 barring 377 copies and 3,293 shams 265,321 hailed at NHSCR (98.1% following rate) 5064 no follow 5.41% gross testing division 5.31% net inspecting portion

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2001 following and coordinating through NHSCR 268,428 beginning specimen (counting copies) 184,537 aggregate followed (69%) 165,227 programmed coordinated and followed at NHSCR (62%) 19,310 followed at NHSCR (new passages) (7%) 84,615 likelihood coordinated against CHI (31%) 57,256 coordinated and sent to NHSCR (21%) 27,359 unmatched, sent to Southport (10%) Still managing around 8,000 issue cases (came back to unique enumeration shapes)

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Vital measurements 1991-2004 basic occasions gave so far Linkage at NHSCR in advancement for 2005

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Hope to ‘complete’ the employment before the end of 2006!

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Governance issues Steering panel to supervise information insurance, privacy and security issues Peter Scrimgeour (GROS) Ganka Mueller (GROS) Robert Brown (GROS) Ed Turnbull (GROS) Muriel Douglas (NHSCR) Paul Boyle (SLS) Lin Hattersley (SLS/GROS) Rod Muir (ISD, Cauldicot Guardian) Louisa Blackwell (ONS) Barbara Kelly (Lay part)

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Three effective applications to PAC Two fruitful applications to national MREC One effective visit to the Information Commissioner Established a SLS Research Board to survey all applications to utilize SLS information Data access conventions drafted

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Security issues The SLS is a mysterious dataset; we don\'t hold name or location data Only those with a ‘need to know’ are mindful of the 20 birthdays An outsider is utilized to embrace the linkage between distinctive datasets (NHSCR) Data are held in a keypad-secure environment Three databases (upkeep, advancement, creation)

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Computers are on a secret key ensured, remain solitary system Team is based inside of the workplaces of GROS Data exchange is logged and checked Abide by ONS conventions on information sharing, access and security Release of the aftereffects of information examination administered (cross-tabs)

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Accessing the SLS A society of information sharing The information will be kept in a ‘secure environment’ A bolster group officially settled to give access to the information An online ‘data dictionary’ as of now being finished Two techniques for information investigation (flow arrangement) ‘Remote access’: Actual information won\'t be discharged – just a picture of the dataset will be discharged (in SPSS, SAS or STATA) ‘Safe-setting’: In-house demonstrating of individual-level information (by bolster group)

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Administrator gets starting solicitation for utilization of SLS (normally through email). This is signed on electronic following framework; every key stage demonstrated Support individual contacts client by means of email User urged to go to client instructional meeting (held like clockwork) if such a session has not been gone to already Project points of interest examined, task solicitation structure finished

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Project solicitation structure submitted to SLS ‘Research Board’ Users educated of rejected proposition and modifications talked about Dataset made by client bolster individual, including bespoke variables. ‘Dataless’ document and essential variable data sent to client User characterizes examination utilizing SAS, SPSS, STATA ‘dataless’ record; bolster individual completes client characterized investigation Support individual checks results are not disclosive and returns results to client Project results reviewed into presentations/papers and talked about with bolster individual

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The future…? Linkage of extra information into the SLS? Expansion of pre-1991, post-1974 fruitfulness occasions Educational information (school statistics and exam results) Historical IQ tests (tried 1932, conceived in 1921)? DWP ‘claimant tally accomplice data’? Little zone geological evaluations of wage and wellbeing related practices? Linkage back to 1981? Data on folks of SLS individuals from DIGROS? Making of a UK LS?

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Conferences Launch/Training Launch and first instructional class, Easter 2007 The Long View: Longitudinal Studies in Scotland (Febru

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